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Can Treacher Collins Syndrome Affect Your Child’s Life Expectancy? It Doesn’t Have To
If your baby is born with Treacher Collins syndrome (TCS), the first things you may notice are craniofacial differences—perhaps a small lower jaw (mandible),…
Looking Ahead: Managing Goldenhar Syndrome Eye Issues
The birth of your child is one of life’s most precious moments. If your baby has been diagnosed with Goldenhar syndrome (GS), it’s natural…
Facing Life With Mild Goldenhar Syndrome: Understanding the Condition and Your Treatment Options
Hearing that your child has Goldenhar syndrome (GS) can feel overwhelming—especially if it’s a condition you’re unfamiliar with. It’s normal to have questions. What…
Two Faces of the Same Coin: Understanding Treacher Collins and Pierre Robin Syndrome
The moment you hold your newborn child is supposed to be filled with joy and wonder. But for some parents, this precious occasion can…
Mandibulofacial Dysostosis
As a parent or caregiver of a child diagnosed with mandibulofacial dysostosis (MFD) or Treacher Collins Syndrome (TCS), you may feel overwhelmed and anxious…
GOLDENHAR SYNDROME
Learning your child may have or has Goldenhar syndrome (GS) can be frightening and overwhelming. You likely feel lost, anxious, and filled with questions…
POLAND Microtia Seminar 2020
We are excited to announce our 2020 Poland Microtia Seminar. Like last year, it will be held at the Marriott in Warsaw. Dates are:…
Typical response to a Augmentation Cranioplasty Inquiry
Hi everyone, I am attaching a copy of a typical email discussion about an augmentation cranioplasty / skull reshaping surgery. Enjoy the read. 1)…
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