Navigating life with a child who has Treacher Collins Syndrome (TCS) comes with unique challenges—ones only parents on this path truly understand.
Severe cases of TCS can bring real worries—breathing, hearing, and feeding challenges that can be overwhelming for any parent.
If your baby is born with Treacher Collins syndrome (TCS), the first things you may notice are craniofacial differences—perhaps a small lower jaw (mandible), malformed ears, or notched eyelids. But what likely weighs most heavily on your heart are the breathing and feeding challenges.
The moment you hold your newborn child is supposed to be filled with joy and wonder. But for some parents, this precious occasion can be overshadowed by worry and uncertainty if they notice something unusual in their little one—like an underdeveloped mandible (lower jaw).
